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First Name : Dayyan
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Email Address : fite_2508@yahoo.co.id
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Date : 17th may 2009
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Comments : Hi, My baby & me got MHE, my baby is a year now & im 30years old.. Its nice knowing that were not alone in this world whose got MHE. I hope by join this group, my baby & me will get more support to live our live.
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First Name : Pamela
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Email Address : navefam@comcast.net
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Date : 4/15/09
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Comments : Hi! i just met a girl with a very seious case of MHE.
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First Name : Pamela
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Email Address : navefam@comcast.net
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Date : 4/15/09
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Comments : Pamela rocks
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First Name : Anne Marie
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Email Address : ahanner@comcast.net
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Date : 02/04/09
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Comments : Thank you for caring so much about these children. God Bless~
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First Name : Marisa
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Email Address : normgrin@verizon.net
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Date : May 23, 2008
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Comments : Hi,
Today I met a 4-year old child with serious bumps on one of his tiny wrists and, for the first time in my life, heard of exostoses.
I have a question, do you have info in Spanish?
Thanks
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First Name : Marsha
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Email Address : marshacv@sbcglobal.net
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Date : May 12, 2008
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Comments : My grand-daughter, who will be 2 in June was recently diagnosed with MHE... our family is still a little shocked at this... Thank you for providing a website that shows the human/personal side of the disease.
hugs to all,
marsha
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First Name : mechele
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Email Address : mechelemcossey@yahoo.com
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Date : 2-28-08
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Comments : Thanks for the helpful info. You have helped me explain this to my kids and others. Thank you for giving us hope.
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First Name : Brenda
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Email Address : bk_ramirez@hotmail.com
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Date : 02/07/2008
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Comments : My 4 year old son has MHE and its so hard for me to explain why his bones arent like the other kids at school. I dont treat him any different as a matter of fact I let him know its just the way his bones are. When he gets older I will explain it all to hi
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First Name : Zoe
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Email Address : zoe.m.t@hotmail.co.uk
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Date : 1st Feb 2008
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Comments : We have just recently found out that my 4yr old son has MHE and is due to have his 1st op very soon. It was really interesting to read the site and the information everyone has written. Thank you xx
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First Name : Brin
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Email Address : none
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Date : none
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Comments : Hello, nice site :)
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